Updated: December 5, 2018
The following is a partial list of sources for issues in bioethics, bio-technology, genetics, stem cells, and reproduction:
~~~Bioethics blogs, centers, & commissions~~~
Blogs (see also embedded links):
- A Blog on Bioethics
- A Heartbreaking Choice (selective reduction/post-prenatal test termination)
- Alice Domurat Dreger (multiple blogs, on sex and bioethics)
- BioEdge
- Bioethics Forum (Hastings Center)
- Biopolitical Times (Center for Genetics and Society)
- Center for Law and Biosciences blog (Stanford U)
- Ethics & Society (Fordham U)
- Fear and Loathing in Bioethics (Carl Elliott)
- Fertile Thoughts—Selective reduction and termination forum
- Global Bioethics Blog (focusing on sub-Saharan Africa)
- I am a product of surrogacy
- Mind Hacks (neuroscience & psychology)
- Mosaic, the science of life
- The Niche (Knoepfler Lab stem cell blog)
- Practical Ethics (UK)
- Stem Cell Treatment Monitor
- The Stem Cellar
Centers & commissions:
- Bioethics.net
- Center for Bioethics and Human Dignity
- Center for Genetics and Society
- Fordham University Center for Ethics Education
- Hastings Center
- Institute for Ethics & Emerging Technologies
- Institute for the Study of Academic Racism
- National Bioethics Advisory Committee (Clinton)
- Nuffield Council on Bioethics (United Kingdom)
- President’s Council on Bioethics (GW Bush)
- Presidential Commission for the Study of Bioethical Issues (Obama)
- UNESCO International Bioethics Committee
- University of Minnesota Center for Bioethics
~~~Commercial sites~~~
~~~Ethics & philosophy~~~
- BBC Religion & ethics
- Encyclopaedia Britannica, Casuistry
- CE Harris, The ethics of natural law, 1997
- Internet Encyclopedia of Philosophy, Bioethics
- Thomas R. McCormick, Principles of Bioethics
- Stanford Encyclopedia of Philosophy
~~~Government sites (sci & med, stem cells, ART)~~~
- California Institute for Regenerative Medicine
- Canadian Institutes of Health Research (also available in French)
- Centers for Disease Control:
- Department of Energy (DOE):
- Department of Health & Human Services (DHHS) Office of Human Research Protections
- OHRP Regulations and Policy
- 45 CFR 46 Guidance, Regulations, Common Rule
- FAQ About Human Research
- Health Canada (also available in French)
- Human Fertilisation & Embryology Authority (United Kingdom)
- Institute of Medicine -> now Health and Medicine Division
- National Academies of Science, Stem Cells
- National Conference of State Legislatures, Embryo and Fetal Research Laws
- National Council on Disabilities
- National Institutes of Health (NIH):
- ClinicalTrials.gov
- Genetics Home Reference
- Handbook (detailed, recommended)
- National Center for Biotechnology Information
- National Human Genome Research Institute
- Office of Science Policy
- Bioethics and NIH-Funded Research
- Biosafety and Recombinant DNA Policy
- Clinical Research Policy
- Dual Use Research of Concern
- Ethical Issues in International Research
- Genetics, Health, and Society
- Healthcare Research Policy
- RAC (Recombinant DNA Advisory Committee)
- Review Process for Human Gene Transfer Trials
- Secretary’s Advisory Committee on Genetics, Health, and Society archives
- Stem Cell Information Home Page
- New York Stem Cell Foundation
~~~Organizations, institutes and archives~~~
- American Association for the Advancement of Science (AAAS)
- American Society for Reproductive Medicine
- BioPortal (Canadian govt site on biotech; also available in French)
- Center for Loss in Multiple Birth (CLIMB)
- Council for Responsible Genetics
- Donor Conception Network (UK)
- Donor Sibling Registry
- Embryo Project Encyclopedia
- European Society of Human Reproduction and Embryology (ESHRE is also the publisher of the journals Human Reproduction, Human Reproduction Update, and Molecular Human Reproduction)
- Guttmacher Institute (Planned Parenthood-associated research inst)
- International Society for Stem Cell Research
- IVF.net
- Methuselah Foundation
- Office of Technology Assessment archive (each site gives access to reports)
- OTA Archive (Federation of American Scientists)
- The OTA Legacy (Princeton)
- Reproductive Health Technologies Project
- Research Ethics Scales and Measures (Fordham)
- RESOLVE: National Infertility Association
- Single Mothers by Choice
- Society for Assisted Reproductive Technology
- Stem Cell Network (Canada)
- StemGen database of global laws and regulations (Canada; also available in French)
- [University of] Minnesota Biomedicine and Bioscience Network (MBBNet)
- University of Utah Genetic Science Learning Center
~~~Reports~~~
- Archive of former bioethics commissions reports (w/some of those reports pulled out, below)
- AAAS, Stem Cell Research and Applications (1999)
- Belmont Report (1979)
- Commission on Parenthood’s Future, The Revolution in Parenthood (2006)
- Institute for American Values. My Daddy’s Name Is Donor (2010)
- Institute of Medicine, Publications. [Note, the list of previous reports was compiled in 2012 and each report used to be linked; alas, all of the links are dead. I leave this up to illustrate the breadth of reports issued by the IOM; there are by now likely over a thousand reports available, including more recent ones on regenerative medicine, stem cells, and genetics.]
- Sex-Specific Reporting of Scientific Research (2012)
- Chimpanzees in Biomedical and Behavioral Research (2011)
- The Science and Applications of Synthetic and Systems Biology (2011)
- Integrating Large-Scale Genomic Information into Clinical Practice (2011)
- Generating Evidence for Genomic Diagnostic Test Development (2011)
- Women’s Health Research (2010)
- Challenges and Opportunities in Using Residual Newborn Screening Samples for Translational Research (2010)
- The Value of Genetic and Genomic Technologies (2010)
- Systems for Research and Evaluation for Translating Genome-Based Discoveries for Health (2009)
- Race, Ethnicity, and Language Data (2009)
- Innovation in Service Delivery in the Age of Genomics (2009)
- Military Medical Ethics (2008)
- Cancer-Related Genetic Testing and Counseling (2007)
- The Future of Disability on America (2007)
- Medical Risks of Oocyte Donation for Stem Cell Research: Workshop Summary (2007)
- Genes, Behavior, and the Social Environment (2006)
- Preterm Birth: Causes, Consequences, and Prevention (2006)
- Ethical Considerations for Research Involving Prisoners (2006)
- Organ Donation (2006)
- Guidelines for Human Embryonic Stem Cell Research (2005)
- Cord Blood (2005)
- Implications of Genomics for Public Health (2005)
- Ethical Conduct of Clinical Research Involving Children (2004)
- New Frontiers in Contraceptive Research (2004)
- The Role of Environmental Hazards in Preterm Birth (2003)
- Reducing Birth Defects (2003)
- Large-Scale Biomedical Science (2003)
- Organ Procurement and Transplantation (2003)
- Responsible Research (2002)
- Integrity in Scientific Research (2002)
- Stem Cells and the Future of Regenerative Medicine (2001)
- National Academies Press,
- all reports & publications
- Human Genome Editing (2017)
- Gene Drive Research in Non-Human Organisms (2016)
- Final Report of the National Academies’ Human Embryonic Stem Cell Research Advisory Committee and 2010 Amendments to the National Academies’ Guidelines for Human Embryonic Stem Cell Research (2010) [click on “Free download-pdf”]
- National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, Research on the Fetus (1975)
- National Council on Disability, Rocking the cradle: Ensuring the rights of parents with disability and their children (2012)
- National Institutes of Health (Dept of Health and Human Services)
- Report of the Human Embryo Research Panel, Vol. I and Vol. II (1994)
- President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Splicing Life (1982)
- US Conference of Catholic Bishops, Life-Giving Love in an Age of Technology, (2009)
- US Congress. CRS Report for Congress. Irene Stith-Coleman. Human Embryo Research (1998)
- Warnock Report of the Committee of Inquiry into Human Fertilisation and Embryology (UK; 1984)
~~~~~
A not-complete-list of Journals about reproduction, genetics, & bioethics (accessible online through the library system; bold=bioethics, philosophy, & policy journals):
- American Journal of Bioethics
- American Journal of Epidemiology
- American Journal of Human Genetics
- American Journal of Law and Medicine
- American Journal of Medical Genetics
- American Journal of Obstetrics and Gynecology
- American Journal of Public Health
- Bioethics
- British Journal of Family Planning
- British Journal of Obstetrics and Gynecology
- British Medical Journal
- Cambridge Quarterly of Healthcare Ethics
- Canadian Medical Association Journal
- Cell (see also Cell: Stem Cell)
- Clinical Investigative Medicine
- Contraception
- Current Biology
- Ethics
- Fertility and Sterility
- Gene Therapy
- Genetics in Medicine
- Genomics
- Hastings Center Report
- Health Affairs
- Health and Human Rights
- Health Care Analysis
- Human Gene Therapy
- Human Heredity
- Human Reproduction
- Issues in Law and Medicine
- Issues in Science and Technology
- Journal of the American Medical Association
- Journal of Clinical Ethics
- Journal of Heredity and Philosophy
- Journal of Intellectual Disability Research
- Journal of Law, Medicine, and Ethics
- Journal of Legal Medicine
- Journal of Medical Ethics
- Journal of Medical Humanities
- Journal of Medicine and Philosophy
- Journal of Women’s Health and Gender-Based Medicine
- Kennedy Institute of Ethics Journal
- Lancet
- Law, Medicine, and Health Care
- Maternal and Child Health Journal
- Medicine and Law
- Molecular Therapy
- Nature (cf. also Nature Genetics & Nature Biotechnology)
- New England Journal of Medicine
- Perspectives in Biology and Medicine
- Politics and the Life Sciences
- Proceedings of the National Academies of Science
- Reproductive Medicine and Biology
- Science
- Scientific American
- Social Science and Medicine
- Stem Cells
- Theoretical Medicine
Also check out PubMed, a joint effort by the US National Library of Medicine and the NIH to make research freely available to the general public.
Courses and questions 